What are the mechanisms underlying the delivery of survivorship care information in Australia? A realist review

Author:

Myers Larry12ORCID,Johnston Elizabeth A.134ORCID,Zajdlewicz Leah1ORCID,Viljoen Bianca156,Kelly Sarah1,Perry Nicole1ORCID,Stiller Anna1,Crawford‐Williams Fiona7,Chan Raymond J.7,Emery Jon D.89,Bergin Rebecca J.810ORCID,Aitken Joanne F.11112,Goodwin Belinda C.1613ORCID

Affiliation:

1. Cancer Council Queensland Fortitude Valley Queensland Australia

2. School of Psychology and Wellbeing University of Southern Queensland Springfield Queensland Australia

3. Population Health Program QIMR Berghofer Medical Research Institute Herston Queensland Australia

4. School of Exercise and Nutrition Sciences Queensland University of Technology Kelvin Grove Queensland Australia

5. School of Nursing and Midwifery University of Southern Queensland Toowoomba Queensland Australia

6. Centre for Health Research University of Southern Queensland Springfield Queensland Australia

7. Caring Futures Institute College of Nursing and Health Sciences Flinders University Bedford Park South Australia Australia

8. Department of General Practice and Primary Care Melbourne Medical School University of Melbourne Melbourne Victoria Australia

9. Centre for Cancer Research University of Melbourne Melbourne Victoria Australia

10. Cancer Epidemiology Division Cancer Council Victoria Melbourne Victoria Australia

11. School of Public Health The University of Queensland Herston Queensland Australia

12. School of Public Health and Social Work Queensland University of Technology Kelvin Grove Queensland Australia

13. School of Population and Global Health University of Melbourne Carlton Victoria Australia

Abstract

AbstractObjectiveQuality survivorship information is an essential component of cancer care. However, survivors often report not receiving this information and healthcare professionals report limited practical guidance on how to effectively deliver survivorship information. Therefore, this study used realist review methods to identify mechanisms reported within the published literature for communicating survivorship information and to understand the contextual factors that make these mechanisms effective.MethodsFull‐text papers published in CINAHL, PubMed, Web of Science, Scopus, Cochrane Library, and Academic Search Ultimate were included. Studies included in this review were conducted in Australia between January 2006 and December 2023, and reported on how information regarding survivorship care was communicated to adult cancer survivors living in the community. This review utilized realist methodologies: text extracts were converted to if‐then statements used to generate context‐mechanism‐outcome theories.ResultsFifty‐one studies were included and six theories for mechanisms that underpin the effective delivery of survivorship information were formed. These include: (1) tailoring information based on the survivors' background, (2) enhancing communication among providers, (3) employing dedicated survivorship staff, (4) providing survivorship training, (5) reducing the burden on survivors to navigate their care, and (6) using multiple modalities to provide information.ConclusionsFindings can inform practical guidance for how survivorship care information is best delivered in practice. Clinicians can apply this guidance to improve their individual interactions with cancer survivors, as can policymakers to develop healthcare systems and procedures that support effective communication of cancer survivorship information.

Publisher

Wiley

Reference69 articles.

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