1. Department of Pediatrics and Child Health University of Cape Town Cape Town South Africa
2. South African MRC Unit for Child and Adolescent Health University of Cape Town Cape Town South Africa
3. Laboratories of Biochemistry and Newborn screening Necker‐Enfants Malades Hospital Assistance Publique‐Hôpitaux de Paris Paris France
4. Centre de Référence Maladies Rares Mucoviscidose et Maladies apparentées. Necker‐Enfants Malades Hospital, Assistance Publique—Hôpitaux de Paris Paris Descartes University Paris France
5. Institut National de la Santé et de la Recherche Médicale U1151 Institut Necker Enfants Malades Paris France
6. European Respiratory Network for Rare Diseases of the Lung
7. Division of Pediatric Gastroenterology, Hepatology and Nutrition University of Toronto, and The Program of Translational Medicine, The Hospital for Sick Children Toronto Ontario Canada