Family involvement in euthanasia or Physician Assisted Suicide and dementia: A systematic review

Author:

Scheeres‐Feitsma Trijntje M.1,van Laarhoven Angela J. J. M. Keijzer2,de Vries Ralph3ORCID,Schaafsma Petruschka1,van der Steen Jenny T.456ORCID

Affiliation:

1. Protestant Theological University Amsterdam Amsterdam The Netherlands

2. Laurens Rotterdam The Netherlands

3. Medical Library Vrije Universiteit Amsterdam Amsterdam The Netherlands

4. Department of Primary and Community Care Radboud university medical center Nijmegen The Netherlands

5. Radboudumc Alzheimer Center Nijmegen The Netherlands

6. Department of Public Health and Primary Care Leiden University Medical Center Leiden The Netherlands

Abstract

AbstractObjectiveTo assess how families are involved in situations of euthanasia or physician assisted suicide (PAS) in dementia.DesignSystematic review searching literature in nine databases from inception up to October 2021. We included studies on family involvement in euthanasia from the perspective of persons with dementia and family caregivers. Themes were formulated through thematic analysis. The design was registered at Prospero (CRD42022298215).ResultsWe assessed 215 of 4038 studies in full text; 19 met the inclusion criteria of which 13 empirical studies. Themes included for people with dementia: being a burden; stage of dementia, and permissibility of euthanasia/PAS. Themes for family were the burden of care, responsibility toward the euthanasia or PAS wish, permissibility of euthanasia/PAS.ConclusionThe wish for euthanasia/PAS arises in situations of burdensome care and fear of future deterioration. The family feels entrusted with the responsibility to enact upon the death wish. In shaping this responsibility, four roles of family can be distinguished: carer, advocate, supporter, and performer. Family as in need of support themselves is understudied.

Publisher

Wiley

Subject

Psychiatry and Mental health,Cellular and Molecular Neuroscience,Geriatrics and Gerontology,Neurology (clinical),Developmental Neuroscience,Health Policy,Epidemiology

Reference51 articles.

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