Burden, professional support, and social network in families of children and young adults with muscular dystrophies-Reference-Cited by-同舟云学术

Burden, professional support, and social network in families of children and young adults with muscular dystrophies

Published:2015-04-22 Issue:1 Volume:52 Page:13-21
ISSN:0148-639X
Container-title:Muscle & Nerve
language:en
Short-container-title:Muscle Nerve

Author:

Magliano Lorenza¹,Patalano Melania¹,Sagliocchi Alessandra¹,Scutifero Marianna²,Zaccaro Antonella²,D'angelo Maria Grazia³,Civati Federica³,Brighina Erika³,Vita Giuseppe⁴,Vita Gian Luca⁴,Messina Sonia⁴,Sframeli Maria⁴,Pane Marika⁵,Lombardo Maria Elena⁵,Scalise Roberta⁵,D'amico Adele⁶,Colia Giulia⁶,Catteruccia Michela⁶,Balottin Umberto⁷,Berardinelli Angela⁸,Chiara Motta Maria⁸,Angelini Corrado⁹,Gaiani Alessandra¹⁰,Semplicini Claudio¹⁰,Bello Luca¹⁰,Battini Roberta¹¹,Astrea Guja¹¹,Politano Luisa²

Affiliation:

1. Department of PsychologySecond University of NaplesViale Ellittico 31, I‐81100 Caserta Italy

2. Cardiomyology and Medical Genetics, Department of Experimental MedicineSecond University of Naples (SUN) Italy

3. NeuroMuscular Unit, Department of NeuroRehabilitationIRCCS “E. Medea”Bosisio Parini (Lc) Italy

4. Department of NeurosciencesUniversity of MessinaRome Italy

5. Department of Paediatric NeurologyCatholic UniversityRome Italy

6. Unit of Neuromuscular and Neurodegenerative DiseasesBambin Gesù Children's HospitalRome Italy

7. Department of Brain and Behavioural Sciences ‐ Child Neuropsychiatry UnitUniversity of Pavia Italy

8. Child NeuropsychiatryIRCCS “C. Mondino” FoundationPavia Italy

9. IRCSS San CamilloLido Venice Italy

10. Department of NeurosciencesUniversity of Padova Italy

11. Developmental NeuroscienceIRCCS Stella MarisPisa Italy

Funder

Telethon UILDM

Publisher

Wiley

Subject

Physiology (medical),Cellular and Molecular Neuroscience,Neurology (clinical),Physiology

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/mus.24503

Reference41 articles.

1. The muscular dystrophies

2. Improvement of survival in Duchenne Muscular Dystrophy: retrospective analysis of 835 patients;Passamano L;Acta Myol,2012

3. Medical and psychosocial considerations in rehabilitation care of childhood neuromuscular diseases

4. A National Profile of Health Care and Family Impacts of Children With Muscular Dystrophy and Special Health Care Needs in the United States

5. Australian families living with rare disease: experiences of diagnosis, health services use and needs for psychosocial support

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