ECHO autism adult healthcare: Training community clinicians to provide quality care for autistic adults

Author:

Malow Beth A.12ORCID,Mazurek Micah3,Stobbe Gary4,Agrawal Mavara M.5,Loftin Rachel6,Caudel David7,Hess Amy8,Westphal Alexander9,Smith Joshua10,Shouse Janet2,Cheak‐Zamora Nancy11ORCID,Sohl Kristin12

Affiliation:

1. Sleep Disorders Division, Department of Neurology Vanderbilt University Medical Center Nashville Tennessee USA

2. Vanderbilt Kennedy Center for Excellence in Developmental Disabilities Vanderbilt University Medical Center Nashville Tennessee USA

3. Department of Human Services University of Virginia Charlottesville Virginia USA

4. Center on Human Development and Disability, Department of Neurology University of Washington Seattle Washington USA

5. Department of Humanities, Health and Society, Herbert Wertheim College of Medicine Florida International University Miami Florida USA

6. Department of Psychiatry and Behavioral Sciences Northwestern University Chicago Illinois USA

7. Frist Center for Autism and Innovation, Department of Engineering Vanderbilt University Nashville Tennessee USA

8. Behavioral Health, Child Development Center Nationwide Children's Hospital Columbus Ohio USA

9. Department of Psychiatry Yale School of Medicine New Haven Connecticut USA

10. Division of Child and Adolescent Psychiatry, Department of Psychiatry and Behavioral Sciences Vanderbilt University Medical Center Nashville Tennessee USA

11. Department of Health Sciences University of Missouri Columbia Missouri USA

12. Department of Child Health University of Missouri School of Medicine Columbia Missouri USA

Abstract

AbstractAutistic adults experience significant unmet healthcare needs, with opportunities for improvement in both the systems and the practitioners who serve this population. Primary care physicians/practitioners (PCPs) are a natural choice to provide comprehensive care to autistic adults but often lack experience in serving this population. This pilot study developed and tested an Extension for Community Healthcare Outcomes (ECHO) Autism model adapted from our previous work, focused specifically on training PCPs in best‐practice care for autistic adults. The project was informed directly by the perspectives and preferences of autistic adults, caregivers, and PCPs. Two consecutive cohorts of PCPs participated in ECHO Autism Adult Healthcare sessions. Each cohort met 1 h twice a month for 6 months, with 37 PCPs (n = 20 in Cohort 1, and n = 17 in Cohort 2) participating. Based on findings from the first cohort, adjustments were made to refine the session preparation, curriculum, conduct of the ECHO, resources, and evaluation. After participation in the ECHO Autism program, PCP self‐efficacy and satisfaction improved, while the number of perceived barriers did not change. Knowledge did not improve significantly in Cohort 1, but after adjustments to the training model, participants in Cohort 2 showed significant knowledge gains. While attention to systems of care is critical to addressing barriers in healthcare in the autistic population, the ECHO Autism Adult Healthcare model is feasible and holds promise for improving PCP satisfaction and self‐efficacy in working with autistic adults.

Publisher

Wiley

Subject

Genetics (clinical),Neurology (clinical),General Neuroscience

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