An educational symposium for patients with sickle cell disease and their families: Results from surveys of knowledge and factors influencing decisions about hematopoietic stem cell transplant-Reference-Cited by-同舟云学术

An educational symposium for patients with sickle cell disease and their families: Results from surveys of knowledge and factors influencing decisions about hematopoietic stem cell transplant

Published:2013-07-30 Issue:12 Volume:60 Page:1946-1951
ISSN:1545-5009
Container-title:Pediatric Blood & Cancer
language:en
Short-container-title:Pediatr Blood Cancer

Author:

Thompson Amanda L.¹²,Bridley Alexis¹,Twohy Eileen¹,Dioguardi Jackie¹,Sande Jane¹,Hsu Lewis L.³,Kamani Naynesh¹²,Meier Emily Riehm¹²

Affiliation:

1. Center for Cancer and Blood Disorders; Children's National Medical Center; Washington District of Columbia

2. Department of Pediatrics; The George Washington University Medical Center; Washington District of Columbia

3. Pediatric Hematology-Oncology; University of Illinois at Chicago, Sickle Cell Center; Chicago Illinois

Funder

Child Health Center Board at Children's National Medical Center

Publisher

Wiley

Subject

Oncology,Hematology,Pediatrics, Perinatology and Child Health

Link

http://onlinelibrary.wiley.com/wol1/doi/10.1002/pbc.24704/fullpdf

Reference13 articles.

1. The number of people with sickle cell disease in the United States: National and state estimates;Brousseau;Am J Hematol,2010

2. Mortality in sickle cell disease-Life expectancy and risk factors for early death;Platt;N Engl J Med,1994

3. Vaso-occlusive painful events in sickle cell disease: Impact on child well-being;Brandow;Pediatr Blood Cancer,2010

4. Parental report of health-related quality of life in children with sickle cell disease;Palermo;J Behav Med,2002

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1. Across the Myeloablative Spectrum: Hematopoietic Cell Transplant Conditioning Regimens for Pediatric Patients with Sickle Cell Disease;Journal of Clinical Medicine;2022-07-03

2. Navigating decisional conflict as a family when facing the decision of stem cell transplant for a child or adolescent with sickle cell disease;Patient Education and Counseling;2021-05

3. Hydroxycarbamide exposure and ovarian reserve in women with sickle cell disease in the Multicenter Study of Hydroxycarbamide;British Journal of Haematology;2020-07-26

4. Assessment of Patient and Caregiver Attitudes and Approaches to Decision-Making Regarding Bone Marrow Transplant for Sickle Cell Disease;JAMA Network Open;2020-05-29

5. Pediatric Hematologists Report Infrequent Prognosis Discussions in the Routine Care of Children with Sickle Cell Disease;Journal of Health Care for the Poor and Underserved;2020