1. John Walton Muscular Dystrophy Research Centre, Institute of Genetic Medicine Newcastle University Newcastle upon Tyne UK
2. Welcome Trust Mitochondrial Research Centre, Institute of Neurosciences Newcastle University Newcastle upon Tyne UK
3. National Hospital for Neurology and Neurosurgery University College London Hospitals NHS Foundation Trust London UK
4. Division of Physiotherapy, Department of Neurobiology, Care Sciences and Society Karolinska Institutet Stockholm Sweden
5. Functional Area Occupational Therapy & Physiotherapy, Allied Health Professionals Function Karolinska University Hospital Stockholm Sweden
6. The Newcastle upon Tyne Hospitals NHS Foundation Trust Newcastle upon Tyne UK
7. Center of Research in Myology Sorbonne Université Paris France
8. Department of Neuropediatrics and Muscle Disorders, Medical Center, Faculty of Medicine University of Freiburg Freiburg Germany
9. Centro Nacional de Análisis Genómico (CNAG‐CRG), Center for Genomic Regulation Barcelona Institute of Science and Technology (BIST) Barcelona Spain
10. Research Institute The Children’s Hospital of Eastern Ontario Ottawa Canada
11. Division of Neurology, Department of Medicine Ottawa University Ottawa Canada