Communication of genetic information to at‐risk relatives during the multidisciplinary monitoring of vascular Ehlers–Danlos syndrome in a French referral clinic-Reference-Cited by-同舟云学术

Communication of genetic information to at‐risk relatives during the multidisciplinary monitoring of vascular Ehlers–Danlos syndrome in a French referral clinic

Published:2020-01-05 Issue:5 Volume:29 Page:828-837
ISSN:1059-7700
Container-title:Journal of Genetic Counseling
language:en
Short-container-title:Jrnl of Gene Coun

Author:

Mazzella Jean‐Michaël¹,Adham Salma¹²,Frank Michael¹³,Legrand Anne¹²³,Lahlou‐Laforêt Khadija¹⁴,Jeunemaitre Xavier¹²³

Affiliation:

1. Centre de Référence des Maladies Vasculaires Rares Assistance Publique‐Hôpitaux de Paris Hôpital Européen Georges Pompidou Paris France

2. Faculté de Médecine Université Paris Descartes Sorbonne Paris Cité Paris France

3. INSERM U970 Paris centre de Recherche Cardiovasculaire – PARCC Paris France

4. Unité de Psychologie et Psychiatrie de Liaison et d’Urgence Assistance Publique‐Hôpitaux de Paris Hôpital Européen Georges Pompidou Paris France

Publisher

Wiley

Subject

Genetics(clinical)

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/jgc4.1211

Reference41 articles.

1. Family Communication in a Population at Risk for Hypertrophic Cardiomyopathy

2. Marfan syndrome in a large family: response of family members to a screening programme.

3. Validation of a French Version of the Impact of Event Scale-Revised

4. Communication of genetic information to families with inherited rhythm disorders

5. Impact of genetic risk information and type of disease on perceived risk, anticipated affect, and expected consequences of genetic tests.

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1. Ehlers-Danlos Syndrome in the Field of Psychiatry: A Review;Frontiers in Psychiatry;2022-01-11

2. Genetic Counseling and Risk Communication;Reference Module in Neuroscience and Biobehavioral Psychology;2021