1. Department of Paediatrics and Adolescent Medicine Lillebaelt Hospital University Hospital of Southern Denmark Kolding Denmark
2. Section of Epidemiology, Department of Public Health University of Copenhagen Copenhagen Denmark
3. Population Health Research Institute St George's University of London London UK
4. Rare Diseases Research Unit Foundation for the Promotion of Health and Biomedical Research in the Valencian Region (UVEG‐FISABIO) Valencia Spain
5. Malta Congenital Anomalies Register Directorate for Health Information and Research Tal‐Pietà Malta
6. Department of Knowledge Brokers THL Finnish Institute for Health and Welfare Helsinki Finland
7. Region Stockholm, Academic Primary Health Care Centre Stockholm Sweden
8. Karolinska Institute, Department of Molecular Medicine and Surgery Stockholm Sweden
9. Department of Global Public Health and Primary Care University of Bergen Bergen Norway
10. INSERM‐INRA, Université de Paris Center of Research in Epidemiology and Statistics (CRESS) Paris France
11. Emilia Romagna Registry of Birth Defects and Center for Clinical and Epidemiological Research University of Ferrara and Azienda Ospedaliera Universitaria di Ferrara Ferrara Italy
12. Unit of Epidemiology of Rare Diseases and Congenital Anomalies, Institute of Clinical Physiology National Research Council Pisa Italy
13. Public Health Wales Swansea UK
14. University of Groningen, University Medical Center Groningen Department of Genetics Groningen the Netherlands
15. Clinical Genetics, University of Southampton and Wessex Clinical Genetics Service Princess Anne Hospital Southampton UK
16. Faculty of Life and Health Sciences Ulster University Northern Ireland UK