1. Department of Human Genetics Amsterdam UMC, location Vrije Universiteit Amsterdam Amsterdam The Netherlands
2. Amsterdam Reproduction and Development Research Institute Amsterdam The Netherlands
3. Department of Clinical Genetics University Medical Centre Groningen University of Groningen Groningen The Netherlands
4. Dutch Patient Alliance for Rare and Genetic Diseases (VSOP) Soest The Netherlands
5. Department of Health, Ethics & Society Maastricht University Research Schools CAPHRI and GROW Maastricht The Netherlands
6. Department of Human Genetics Amsterdam UMC, location University of Amsterdam Amsterdam The Netherlands
7. Psychosocial Department Amsterdam UMC, location University of Amsterdam Emma Children's Hospital Amsterdam The Netherlands