Culture, ethnicity, and socio‐economic status as determinants of the management of patients with advanced heart failure who need palliative care: A clinical consensus statement from the Heart Failure Association (HFA) of the ESC, the ESC Patient Forum, and the European Association of Palliative Care

Author:

Hill Loreena12,Baruah Resham3,Beattie James M.4,Bistola Vasiliki5,Castiello Teresa6,Celutkienė Jelena7,Di Stolfo Giuseppe8,Geller Tal Prager9,Lambrinou Ekaterini10,Mindham Richard11,McIlfatrick Sonja12,Strömberg Anna1314,Jaarsma Tiny1315

Affiliation:

1. School of Nursing and Midwifery Queen's University Belfast Belfast UK

2. College of Nursing and Midwifery Mohammed Bin Rashid University Dubai United Arab Emirates

3. Chelsea and Westminster NHS Foundation Trust London UK

4. Cicely Saunders Institute King's College London London UK

5. National and Kapodistrian University of Athens, Department of Cardiology, Heart Failure Unit Attikon University Hospital Athens Greece

6. Department of Cardiovascular Imaging King's College London, Croydon Health Service London London UK

7. Clinic of Cardiac and Vascular Diseases, Institute of Clinical Medicine, Faculty of Medicine Vilnius University Vilnius Lithuania

8. Cardiovascular Department Fondazione IRCCS Casa Sollievo della Sofferenza San Giovanni Rotondo Italy

9. Palliative care centre DOROT medical centre Netanya Netanya Israel

10. Department of Nursing Cyprus University of Technology Limassol Cyprus

11. United Kingdom European Society of Cardiology Patient Forum Sophia Antipolis France

12. Institute of Nursing and Health Research Ulster University Belfast UK

13. Department of Health, Medicine and Health Sciences Linköping University Linköping Sweden

14. Department of Cardiology Linköping University Linköping Sweden

15. Julius Center University Medical Center Utrecht Utrecht The Netherlands

Abstract

AbstractThe delivery of effective healthcare entails the configuration and resourcing of health economies to address the burden of disease, including acute and chronic heart failure, that affects local populations. Increasing migration is leading to more multicultural and ethnically diverse societies worldwide, with migration research suggesting that minority populations are often subject to discrimination, socio‐economic disadvantage, and inequity of access to optimal clinical support. Within these contexts, the provision of person‐centred care requires medical and nursing staff to be aware of and become adept in navigating the nuances of cultural diversity, and how that can impact some individuals and families entrusted to their care. This paper will examine current evidence, provide practical guidance, and signpost professionals on developing cultural competence within the setting of patients with advanced heart failure who may benefit from palliative care.

Publisher

Wiley

Subject

Cardiology and Cardiovascular Medicine

Reference127 articles.

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2. The Heart Failure Association Atlas : Heart Failure Epidemiology and Management Statistics 2019

3. Impact analysis of heart failure across European countries: an ESC‐HFA position paper

4. Global burden of heart failure: a comprehensive and updated review of epidemiology

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