Factors complicating the informed consent process for whole exome sequencing in neonatal and pediatic intensive care units
Author:
Affiliation:
1. Division of Medical Genomics; Inova Translational Medicine Institute; Falls Church Virginia
Publisher
Wiley
Subject
Genetics (clinical)
Link
http://onlinelibrary.wiley.com/wol1/doi/10.1002/jgc4.1097/fullpdf
Reference32 articles.
1. Informed consent in decision-making in pediatric practice;American Academy of Pediatric Committee on Bioethics;Pediatrics,2016
2. Points to consider for informed consent for genome/exome sequencing;American College of Medical Genetics Board of Directors;Genetics in Medicine,2013
3. Informed consent for whole-genome sequencing studies in the clinical setting. Proposed recommendations on essential content and process;Ayuso;European Journal of Human Genetics,2013
4. Traumatic stress in parents of children admitted to the pediatric intensive care unit;Balluffi;Pediatric Critical Care Medicine,2004
5. The limits of informed consent for an overwhelmed patient: Clinicians' role in protecting patients and preventing overwhelm;Bester;The AMA Journal of Ethics,2016
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