Impact of the iWHELD digital person‐centered care program on quality of life, agitation and psychotropic medications in people with dementia living in nursing homes during the COVID‐19 pandemic: A randomized controlled trial

Author:

McDermid Joanne12,Henley William1,Corbett Anne1ORCID,Williams Gareth2,Fossey Jane1,Clare Linda13,Fox Chris1,Aarsland Dag2,Khan Zunera2,Soto Maria4,Woodward‐Carlton Barbara5,Cook Esme Moniz6,Cummings Jeffrey7,Sweetnam Adrienne1,Chan Xavier1,Lawrence Megan1,Ballard Clive1,

Affiliation:

1. University of Exeter Medical School University of Exeter Exeter UK

2. Institute of Psychiatry Psychology and Neuroscience King's College London London UK

3. NIHR Applied Research Collaboration South‐West Peninsula University of Exeter Exeter UK

4. Research and Clinical Alzheimer's Disease Center CMRR Gérontopôle, CHU Toulouse, AGING team axe MAINTAIN CERPOP Toulouse France

5. Alzheimer's Society UK London UK

6. Faculty of Health Sciences University of Hull Hull UK

7. Chambers‐Grundy Center for Transformative Neuroscience, Department of Brain Health, School of Integrated Health Sciences University of Nevada Las Vegas (UNLV) Las Vegas Nevada USA

Abstract

IntroductioniWHELD is a digital person‐centered care program for people with dementia in nursing homes adapted for remote delivery during the COVID‐19 pandemic.MethodsA 16‐week two‐arm cluster‐randomized controlled trial in 149 UK nursing homes compared iWHELD with treatment as usual (TAU). Primary outcome was the overall quality of life with secondary outcomes of agitation and psychotropic use.ResultsiWHELD conferred benefit to quality of life on the primary (F = 4.3, p = 0.04) and secondary measures of quality of life (F = 6.45, p = 0.01) and reduced psychotropic medication use (χ2 = 4.08, p = 0.04) with no worsening of agitation. Benefit was seen in participants who contracted COVID‐19, those with agitation at baseline, and those taking psychotropic medications.DiscussioniWHELD confers benefits to quality of life and key measures of well‐being, can be delivered during the challenging conditions of a pandemic, and should be considered for use alongside any emerging pharmacological treatment for neuropsychiatric symptoms.Highlights iWHELD is the only remote, digital delivery nursing home training programme for dementia care iWHELD improved quality of life in people with dementia and reduced antipsychotic use without worsening of agitation Residents who contracted Covid‐19 during the study also experienced benefits from iWHELD iWHELD offers a valuable, pandemic‐safe tool for improving dementia care

Publisher

Wiley

Subject

Psychiatry and Mental health,Cellular and Molecular Neuroscience,Geriatrics and Gerontology,Neurology (clinical),Developmental Neuroscience,Health Policy,Epidemiology

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