Promoting diverse perspectives: Addressing health disparities related to Alzheimer's and all dementias

Author:

Maestre Gladys1,Hill Carl2,Griffin Percy2,Hall Stephen2ORCID,Hu William3,Flatt Jason4,Babulal Ganesh5,Thorpe Roland6,Henderson J. Neil7,Buchwald Dedra8,Manson Spero9,Cicero Ethan10,Gilmore‐Bykovskyi Andrea11,Gamaldo Alyssa12,Glover Crystal13,Barnes Lisa13,Kind Amy11,James Bryan13,Zeki Al Hazzouri Adina14,Wharton Whitney10,Caramelli Paulo15,Szanton Sarah16,Whitmer Rachel17,Benn Torres Jada18,Deters Kacie19,Okonkwo Ozioma20,Das Rina21,Martinez‐Gonzalez Karen22,Carrillo Maria2

Affiliation:

1. School of Medicine Alzheimer's Disease Resource Center for Minority Aging Research University of Texas Rio Grande Valley Brownsville Texas USA

2. Medical & Scientific Relations Alzheimer's Association Chicago Illinois USA

3. Rutgers Robert Wood Johnson Medical School and Rutgers Institute for Health Health Care Policy, and Aging Research New Brunswick New Jersey USA

4. Department of Social and Behavioral Health School of Public Health University of Nevada Las Vegas Las Vegas Nevada USA

5. Department of Neurology School of Medicine Washington University in St. Louis St. Louis Missouri USA

6. Center on Aging Center on Health Disparities Solutions Hopkins Population Center Alzheimer's Disease Resource Center for Minority Aging Research Johns Hopkins University Bloomberg School of Public Health Baltimore Maryland USA

7. University of Minnesota Medical School Duluth Minnesota USA

8. Institute for Research and Education to Advance Community Health Elson S Floyd College of Medicine Washington State University Seattle Washington USA

9. Centers for American Indian and Alaska Native Health University of Colorado Anschutz Medical Campus Aurora Colorado USA

10. Nell Hodgson Woodruff School of Nursing Emory University Atlanta Georgia USA

11. BerbeeWalsh Department of Emergency Medicine University of Wisconsin‐Madison School of Medicine and Public Health Madison Wisconsin USA

12. Pennsylvania State University State College Pennsylvania USA

13. Rush University Medical Center Chicago Illinois USA

14. Mailman School of Public Health Department of Epidemiology Columbia University New York New York USA

15. Behavioral and Cognitive Neurology Unit, Faculdade de Medicina Universidade Federal de Minas Gerais Belo Horizonte Brazil

16. Johns Hopkins University School of Nursing Baltimore Maryland USA

17. Department of Public Health Sciences Department of Neurology University of California Davis Davis California USA

18. Vanderbilt University Nashville Tennessee USA

19. Department of Neurosciences University of California San Diego School of Medicine La Jolla California USA

20. Department of Medicine and the Wisconsin Alzheimer's Disease Research Center University of Wisconsin School of Medicine and Public Health Madison Wisconsin USA

21. National Institute on Minority Health and Health Disparities Bethesda Maryland USA

22. University of Puerto Rico San Juan Puerto Rico

Abstract

AbstractDementia research lacks appropriate representation of diverse groups who often face substantial adversity and greater risk of dementia. Current research participants are primarily well‐resourced, non‐Hispanic White, cisgender adults who live close to academic medical centers where much of the research is based. Consequently, the field faces a knowledge gap about Alzheimer's‐related risk factors in those other groups. The Alzheimer's Association hosted a virtual conference on June 14–16, 2021, supported in part by the National Institute on Aging (R13 AG072859‐01), focused on health disparities. The conference was held entirely online and consisted of 2 days of core programming and a day of focused meetings centered on American Indian and Alaska Natives and on LGBTQIA+ populations. Over 1300 registrants attended discussions focused on the structural and systemic inequities experienced across diverse groups, as well as ways to investigate and address these inequities.

Funder

National Institute on Aging

Publisher

Wiley

Reference49 articles.

1. Social determinants of health—Healthy people 2030 | health.gov.Healthy People 2030. Accessed November 9 2023.https://health.gov/healthypeople/priority‐areas/social‐determinants‐health

2. Health Disparities and Health Equity: The Issue Is Justice

3. The National Institute on Aging Health Disparities Research Framework

4. 2021 Alzheimer's disease facts and figures

5. Updated Guidance on the Reporting of Race and Ethnicity in Medical and Science Journals

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