Outcomes of infants born during the first 9 years of CF newborn screening in the United States: A retrospective Cystic Fibrosis Foundation Patient Registry cohort study

Author:

Martiniano Stacey L.12ORCID,Elbert Alexander A.3,Farrell Philip M.4ORCID,Ren Clement L.56ORCID,Sontag Marci K.17ORCID,Wu Runyu3,McColley Susanna A.89ORCID

Affiliation:

1. Department of Pediatrics, Section of Pulmonary and Sleep Medicine University of Colorado Anschutz Medical Center Aurora Colorado USA

2. Children's Hospital Colorado Aurora Colorado USA

3. Cystic Fibrosis Foundation USA

4. Departments of Pediatrics and Population Health Sciences University of Wisconsin‐Madison School of Medicine and Public Health Madison Wisconsin USA

5. Division of Pulmonology, Allergy, and Sleep Medicine Indiana University School of Medicine Indianapolis Indiana USA

6. Riley Hospital for Children Indianapolis Indiana USA

7. Center for Public Health Innovation at CI International USA

8. Ann & Robert H. Lurie Children's Hospital of Chicago Chicago Illinois USA

9. Department of Pediatrics, Pulmonary and Sleep Medicine Northwestern University Feinberg School of Medicine Chicago Illinois USA

Funder

Cystic Fibrosis Foundation

Publisher

Wiley

Subject

Pulmonary and Respiratory Medicine,Pediatrics, Perinatology and Child Health

Reference47 articles.

1. Newborn screening: toward a uniform screening panel and system: executive summary;American College of Medical Genetics Newborn Screening Expert Group;Pediatrics,2006

2. Newborn Screening Timeliness Goals.2017. Accessed November 24 2020.https://hrsa.gov/advisory-committees/heritable-disorders/newborn-screening-timeliness.html

3. Newborn screening timeliness quality improvement initiative: Impact of national recommendations and data repository

4. Two-tiered immunoreactive trypsinogen-based newborn screening for cystic fibrosis in Colorado: screening efficacy and diagnostic outcomes

5. Newborn screening for cystic fibrosis: evaluation of benefits and risks and recommendations for state newborn screening programs;Grosse SD;MMWR Recomm Rep,2004

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