Stakeholder perspectives regarding pragmatic clinical trial collateral findings-Reference-Cited by-同舟云学术

Stakeholder perspectives regarding pragmatic clinical trial collateral findings

Published:2020-08-28 Issue:4 Volume:5 Page:
ISSN:2379-6146
Container-title:Learning Health Systems
language:en
Short-container-title:Learn Health Sys

Author:

Morain Stephanie R.¹^ORCID,Mathews Debra J. H.²³,Weinfurt Kevin⁴,May Elizabeth²,Bollinger Juli M.²,Geller Gail²⁵,Sugarman Jeremy²⁵^ORCID

Affiliation:

1. Center for Medical Ethics and Health Policy Baylor College of Medicine Houston Texas USA

2. Berman Institute of Bioethics Johns Hopkins University Baltimore Maryland USA

3. Department of Pediatrics Johns Hopkins University School of Medicine Baltimore Maryland USA

4. Department of Population Health Sciences Duke University School of Medicine Durham North Carolina USA

5. Department of Medicine Johns Hopkins University School of Medicine Baltimore Maryland USA

Funder

National Center for Complementary and Integrative Health

National Institutes of Health

Publisher

Wiley

Subject

Health Information Management,Public Health, Environmental and Occupational Health,Health Informatics

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/lrh2.10245

Reference15 articles.

1. Presidential Commission for the Study of Bioethical Issues. Anticipate and communicate: ethical management of incidental and secondary findings in the linical research and direct to consumer contexts.2013.

2. Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations

3. Incidental Findings and Ancillary-Care Obligations

4. ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

5. Ethics and Collateral Findings in Pragmatic Clinical Trials

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