1. Department of Endocrine Oncology University Medical Center Utrecht Utrecht the Netherlands
2. Department of Endocrinology Amsterdam University Medical Center Amsterdam the Netherlands
3. Dutch VHL Organization Utrecht the Netherlands
4. International Kidney Cancer Coalition Amsterdam‐Duivendrecht the Netherlands
5. Department of Internal Medicine Division of Endocrinology Maastricht University Medical Center Maastricht the Netherlands
6. Department of Medical Genetics University Medical Center Utrecht Utrecht the Netherlands
7. Department of Endocrinology University Medical Center Groningen Groningen the Netherlands
8. Department of Endocrinology Radboud University Medical Center Nijmegen the Netherlands
9. Department of Neurology University Medical Center Utrecht Utrecht the Netherlands
10. Department of Internal Medicine Erasmus Medical Center Rotterdam the Netherlands
11. Department of Pediatric Endocrinology University Medical Center Utrecht Utrecht the Netherlands
12. Department of Ophthalmology Erasmus Medical Center Rotterdam the Netherlands
13. Department of Oncological Urology University Medical Center Utrecht Utrecht the Netherlands
14. Department of Urology Amsterdam University Medical Center Amsterdam the Netherlands
15. Department of Neurosurgery Amsterdam Neuroscience Amsterdam the Netherlands
16. Division of Ocular Oncology and Pathology Department of Ophthalmology and Visual Sciences, Vanderbilt‐Ingram Cancer Center Vanderbilt University Medical Center Nashville Tennessee