A review and definition of ‘usual care’ in genetic counseling trials to standardize use in research-Reference-Cited by-同舟云学术

A review and definition of ‘usual care’ in genetic counseling trials to standardize use in research

Published:2020-12-05 Issue:1 Volume:30 Page:42-50
ISSN:1059-7700
Container-title:Journal of Genetic Counseling
language:en
Short-container-title:Jrnl of Gene Coun

Author:

Biesecker Barbara B.¹,Lillie Sarah E.²,Amendola Laura M.³,Donohue Katherine E.⁴,East Kelly M.⁵,Foreman Ann Katherine M.⁶,Gilmore Marian J.⁷,Greve Veronica⁵,Liangolou Billie⁸,O'Daniel Julianne M.⁶,Odgis Jacqueline A.⁴,Rego Shannon⁹,Rolf Bradley³,Scollon Sarah¹⁰,Suckiel Sabrina A.⁴,Zepp Jamilyn⁷,Joseph Galen¹¹

Affiliation:

1. Genomics, Bioinformatics and Translation RTI International Washington DC USA

2. Center for Communication Science RTI International Research Triangle Park NC USA

3. Division of Medical Genetics University of Washington Seattle WA USA

4. Institute for Genomic Health The Icahn School of Medicine at Mount Sinai New York NY USA

5. HudsonAlpha Institute for Biotechnology Huntsville AL USA

6. Department of Genetics University of North Carolina Chapel Hill NC USA

7. Department of Translational and Applied Genomics Kaiser Permanente ‐ Center for Health Research Portland OR USA

8. UCSF Benioff Children’s Hospital San Francisco CA USA

9. Institute for Human Genetics University of California San Francisco CA USA

10. Department of Pediatrics Baylor College of Medicine Houston TX USA

11. Department of Humanities and Social Sciences University of California San Francisco CA USA

Publisher

Wiley

Subject

Genetics (clinical)

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/jgc4.1363

Reference35 articles.

1. The Global State of the Genetic Counseling Profession

2. Accreditation Council for Genetic Counseling Practice‐Based Competencies for Genetic Counselors(2019). Retrieved fromhttps://www.gceducation.org/wp‐content/uploads/2019/06/ACGC‐Core‐Competencies‐Brochure_15_Web_REV‐6‐2019.pdf

3. The Clinical Sequencing Evidence-Generating Research Consortium: Integrating Genomic Sequencing in Diverse and Medically Underserved Populations

4. Examining the “usual” in usual care: a critical review and recommendations for usual care conditions in psycho-oncology

5. A Systematic Review of Randomized Controlled Trials to Assess Outcomes of Genetic Counseling

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