Reasons for Not Participating in Scleroderma Patient Support Groups: A Cross‐Sectional Study-Reference-Cited by-同舟云学术

Reasons for Not Participating in Scleroderma Patient Support Groups: A Cross‐Sectional Study

Published:2018-01-11 Issue:2 Volume:70 Page:275-283
ISSN:2151-464X
Container-title:Arthritis Care & Research
language:en
Short-container-title:Arthritis Care Res

Author:

Gumuchian Stephanie T.¹,Delisle Vanessa C.¹,Peláez Sandra¹,Malcarne Vanessa L.²,El‐Baalbaki Ghassan³,Kwakkenbos Linda⁴,Jewett Lisa R.¹,Carrier Marie‐Eve⁵,Pépin Mia⁵,Thombs Brett D.¹,Connolly Kerri,Riggs Robert,Dyas Laura,Elrod Stephen,Gottesman Karen,Fortune Catherine,McCusker Anna,Sauve Maureen,Richard Michelle,Stephens Nancy,

Affiliation:

1. Lady Davis Institute of the Jewish General Hospital and McGill University Montreal Quebec Canada

2. San Diego Joint Doctoral Program in Clinical Psychology San Diego State University/University of California San Diego

3. University of Quebec at Montreal Montreal Quebec Canada

4. Lady Davis Institute of the Jewish General Hospital and McGill University Montreal, Quebec, Canada, and Behavioural Science Institute Clinical Psychology, Radboud University Nijmegen The Netherlands

5. Lady Davis Institute of the Jewish General Hospital Montreal Quebec Canada

Funder

Canadian Institutes of Health Research

Arthritis Society

Publisher

Wiley

Subject

Rheumatology

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/acr.23220

Reference50 articles.

1. Life with a rare chronic disease: the scleroderma experience

2. European Organisation for Rare Diseases.Rare diseases: understanding this public health priority. Paris.2005. URL:http://www.eurordis.org/IMG/pdf/princeps_document-EN.pdf.

3. Why rare diseases are an important medical and social issue

4. The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context

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