Involving the Public in Rare Cancer Care and Research-Reference-Cited by-同舟云学术

Involving the Public in Rare Cancer Care and Research

Published:2017-03-11 Issue: Volume: Page:12-18
ISSN:
Container-title:Textbook of Uncommon Cancer
language:
Short-container-title:

Author:

Nunn Jack S.¹,Scott Clare L.²³⁴,Stubbs John W.⁵⁶,Cherry Sarah F.⁶⁷,Bismark Marie M.⁶⁸

Affiliation:

1. La Trobe University; Melbourne Victoria Australia

2. Royal Melbourne Hospital; Parkville Victoria Australia

3. Walter and Eliza Hall Institute of Medical Research; Parkville Victoria Australia

4. University of Melbourne; Parkville Victoria Australia

5. CANSpeak; Queensland

6. Walter and Eliza Hall Institute of Medical Research, Consumer Advisory Panel; Parkville Victoria Australia

7. Victoria Australia

8. Melbourne School of Population and Global Health; University of Melbourne; Melbourne Victoria Australia

Publisher

John Wiley & Sons, Ltd

Link

http://onlinelibrary.wiley.com/wol1/doi/10.1002/9781119196235.ch3/fullpdf

Reference39 articles.

1. Rare Cancers Australia. Media release: rare cancers kill more Aussie kids than any other disease http://web.archive.org/web/20160411031027/http://www.rarecancers.org.au/news/3337/rare-cancers-kill-more-aussie-kids-than-any-other-disease-

2. Mapping the impact of patient and public involvement on health and social care research: a systematic review;Brett;Health Expect,2014

3. International Rare Cancers Initiative (IRCI);Keat;Ecancermedicalscience,2013

4. Rare cancers are not so rare: the rare cancer burden in Europe;Gatta;Eur J Cancer,2011

5. NHS National Institue for Health Research Frequently asked questions http://web.archive.org/web/20160322055615/http://www.invo.org.uk/frequently-asked-questions/

Cited by 4 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Standardised data on initiatives—STARDIT: Beta version;Research Involvement and Engagement;2022-07-19

2. Co-designing genomics research with a large group of donor-conceived siblings;Research Involvement and Engagement;2021-12

3. Involving people affected by a rare condition in shaping future genomic research;Research Involvement and Engagement;2021-03-15

4. CART-WHEEL.org: An Ethically Approved Online Database for Patient-Entered Data to Facilitate Rare Cancer Research;JCO Clinical Cancer Informatics;2020-09