Healthcare experiences of patients with Down syndrome who are Black, African American, of African descent, or of mixed race-Reference-Cited by-同舟云学术

Healthcare experiences of patients with Down syndrome who are Black, African American, of African descent, or of mixed race

Published:2022-12-09 Issue:3 Volume:191 Page:742-752
ISSN:1552-4825
Container-title:American Journal of Medical Genetics Part A
language:en
Short-container-title:American J of Med Genetics Pt A

Author:

Krell Kavita¹^ORCID,Pless Albert¹,Michael Carie²,Torres Amy¹,Chung Jeanhee³,Baker Sandra,Blake Jasmine M.⁴^ORCID,Caughman Kelli,Cullen Sarah⁵,Gallagher Maureen⁵,Hoke‐Chandler Roxanne,Maina Julius,McLuckie Diana,O'Neill Kate⁶,Peña Angeles⁷,Royal Dina,Slape Michelle⁶,Spinazzi Noemi Alice⁸,Torres Carlos G.⁹^ORCID,Skotko Brian G.¹⁹^ORCID

Affiliation:

1. Down Syndrome Program, Division of Medical Genetics and Metabolism, Department of Pediatrics Massachusetts General Hospital Boston Massachusetts USA

2. Mongan Institute, Massachusetts General Hospital Boston Massachusetts USA

3. Laboratory of Computer Science, Massachusetts General Hospital Boston Massachusetts USA

4. Departments of Internal Medicine and Pediatrics Icahn School of Medicine at Mount Sinai New York New York USA

5. Massachusetts Down Syndrome Congress Burlington Massachusetts USA

6. LuMind IDSC Down Syndrome Foundation Burlington Massachusetts USA

7. Department of Pediatrics Oregon Health & Science University Portland Oregon USA

8. Division of Primary Care, Department of Pediatrics University of California San Francisco Benioff Children's Hospital Oakland Oakland California USA

9. Department of Pediatrics Harvard Medical School Boston Massachusetts USA

Publisher

Wiley

Subject

Genetics (clinical),Genetics

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/ajmg.a.63069

Reference25 articles.

1. A Qualitative Study of Client–Clinician Text Exchanges in a Mobile Health Intervention for Individuals With Psychotic Disorders and Substance Use

2. How Structural Racism Works — Racist Policies as a Root Cause of U.S. Racial Health Inequities

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4. CAHPS.Clinician & group survey.https://www.ahrq.gov/cahps/surveys-guidance/cg/index.html

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