Parenting a child with Marfan syndrome: Distress and everyday problems-Reference-Cited by-同舟云学术

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Parenting a child with Marfan syndrome: Distress and everyday problems

Published:2020-10-09 Issue:1 Volume:185 Page:50-59
ISSN:1552-4825
Container-title:American Journal of Medical Genetics Part A
language:en
Short-container-title:Am J Med Genet

Author:

Warnink‐Kavelaars Jessica¹^ORCID,Oers Hedy A.²,Haverman Lotte²,Buizer Annemieke I.¹³⁴,Alsem Mattijs W.¹,Engelbert Raoul H. H.¹⁵⁴,Menke Leonie A.⁴

Affiliation:

1. Department of Rehabilitation Medicine Amsterdam UMC, University of Amsterdam, Amsterdam Movement Sciences Amsterdam Netherlands

2. Psychosocial Department Emma Children's Hospital, Amsterdam UMC, University of Amsterdam Amsterdam Netherlands

3. Department of Rehabilitation Medicine Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam Movement Sciences Amsterdam Netherlands

4. Department of Pediatrics Emma Children's Hospital, Amsterdam UMC, University of Amsterdam Amsterdam Netherlands

5. Center of Expertise Urban Vitality University of Applied Sciences, Faculty of Health Amsterdam The Netherlands

Publisher

Wiley

Subject

Genetics(clinical),Genetics

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/ajmg.a.61906

Reference39 articles.

1. Current research status on the psychological situation of parents of children with congenital heart disease

2. Psychosocial Functioning in Parents of MPS III Patients

3. Parenting Stress Among Caregivers of Children With Chronic Illness: A Systematic Review

4. Parental Distress and Quality of Life in Pediatric Inflammatory Bowel Disease: Implications for the Outpatient Clinic

Cited by 9 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Depressive and anxiety symptoms in caregivers of children with congenital ectopia lentis: a prospective cross-sectional study;BMJ Open;2024-08

2. Health-related quality of life in children and adolescents with Marfan syndrome or related disorders: a controlled cross-sectional study;Orphanet Journal of Rare Diseases;2024-04-30

3. Health-related quality of life in children and adolescents with Marfan syndrome or related disorders: a controlled cross-sectional study;2023-09-11

4. Distress in parents of children with first-onset steroid-sensitive nephrotic syndrome;Pediatric Nephrology;2023-06-28

5. Fatigue in patients with syndromic heritable thoracic aortic disease: a systematic review of the literature and a qualitative study of patients’ experiences and perceptions;Orphanet Journal of Rare Diseases;2023-05-19

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