1. Clinical GeneticsRoyal Devon and Exeter NHS Foundation Trust Exeter UK
2. Department of PathologyDerriford Hospital Plymouth UK
3. Department of RheumatologyDerriford Hospital Plymouth UK
4. Wessex Clinical Genetics ServicePrincess Anne Hospital Southampton UK
5. Complex Ehlers‐Danlos Syndromes National Service LondonNorth West University Healthcare NHS Trust Harrow Middlesex UK