Managing the need to tell: Triggers and strategic disclosure of thalassemia major in Singapore-Reference-Cited by-同舟云学术

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Managing the need to tell: Triggers and strategic disclosure of thalassemia major in Singapore

Published:2019-03-01 Issue:5 Volume:179 Page:762-769
ISSN:1552-4825
Container-title:American Journal of Medical Genetics Part A
language:en
Short-container-title:Am J Med Genet

Author:

Kumar Neha¹,Turbitt Erin¹²^ORCID,Biesecker Barbara B.¹,Miller Ilana M.¹,Cham Breana³,Smith Katherine C.⁴,Rimal Rajiv N.⁴

Affiliation:

1. Social and Behavioral Research Branch; National Human Genome Research Institute; Bethesda Maryland

2. University of Technology Sydney, Graduate School of Health; Australia

3. Department of Paediatric Medicine; KK Women's and Children's Hospital; Singapore

4. Health, Behavior and Society; Johns Hopkins Bloomberg School of Public Health; Baltimore Maryland

Funder

National Institutes of Health

National Human Genome Research Institute

Publisher

Wiley

Subject

Genetics(clinical),Genetics

Link

http://onlinelibrary.wiley.com/wol1/doi/10.1002/ajmg.a.61107/fullpdf

Reference32 articles.

1. Living a ‘normal'life: Young people coping with thalassaemia major or sickle cell disorder;Atkin;Social Science & Medicine,2001

2. A model of HIV disclosure: Disclosure and types of social relationships;Bairan;Journal of the American Academy of Nurse Practitioners,2007

3. Using thematic analysis in psychology;Braun;Qualitative Research in Psychology,2006

4. ‘Discovering’ chronic illness: Using grounded theory;Charmaz;Social Science & Medicine,1990

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3. Predictors of health state utility values using SF-6D for Chinese adult patients with β-thalassemia major;Frontiers in Public Health;2023-01-19

4. Effectiveness of Individualized Empowerment Education on Children with Beta-Thalassemia Major: A Mixed-Method Study;Izmir Democracy University Health Sciences Journal;2022-12-10

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