Perceived utility and disutility of genomic sequencing for pediatric patients: Perspectives from parents with diverse sociodemographic characteristics-Reference-Cited by-同舟云学术

Perceived utility and disutility of genomic sequencing for pediatric patients: Perspectives from parents with diverse sociodemographic characteristics

Published:2022-01-03 Issue:4 Volume:188 Page:1088-1101
ISSN:1552-4825
Container-title:American Journal of Medical Genetics Part A
language:en
Short-container-title:American J of Med Genetics Pt A

Author:

Halley Meghan C.¹^ORCID,Young Jennifer L.¹,Fernandez Liliana²,Kohler Jennefer N.²,Bernstein Jonathan A.³,Wheeler Matthew T.⁴,Tabor Holly K.¹⁵,

Affiliation:

1. Stanford Center for Biomedical Ethics Stanford University School of Medicine Stanford California USA

2. Stanford Center for Undiagnosed Diseases Stanford University Stanford California USA

3. Department of Pediatrics Stanford University School of Medicine Stanford California USA

4. Division of Cardiovascular Medicine Stanford University School of Medicine Stanford California USA

5. Department of Medicine (and by courtesy, Department of Epidemiology) Stanford University Stanford California USA

Funder

National Center for Advancing Translational Sciences

National Human Genome Research Institute

National Institutes of Health

Stanford Maternal and Child Health Research Institute

Publisher

Wiley

Subject

Genetics (clinical),Genetics

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/ajmg.a.62619

Reference46 articles.

1. FORGE Canada Consortium: Outcomes of a 2-Year National Rare-Disease Gene-Discovery Project

2. Taking an antiracist posture in scientific publications in human genetics and genomics

3. Personal utility in genomic testing: is there such a thing?

4. Racial and ethnic differences in knowledge and attitudes about genetic testing in the US: Systematic review

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