Involving different stakeholders in prioritising outcomes to assess healthcare systems response for type 1 diabetes management: Using co‐creation approaches in Peru

Author:

Zafra‐Tanaka Jessica Hanae12ORCID,Almeida Guillermo1,Andrade Montalvo Jackelyn Elizabeth1,Anza‐Ramirez Cecilia1ORCID,Jauregui Josselyn1,Perez‐Leon Silvana1,Lazo‐Porras Maria1,Mayo‐Puchoc Nikol1,Taype‐Rondán Alvaro34,Miranda J. Jaime15,Beran David2

Affiliation:

1. CRONICAS Center of Excellence in Chronic Diseases Universidad Peruana Cayetano Heredia Lima Peru

2. Division of Tropical and Humanitarian Medicine University of Geneva and Geneva University Hospitals Geneva Switzerland

3. Unidad de Investigación para la Generación y Síntesis de Evidencia en Salud Vicerrectorado de Investigación Universidad San Ignacio de Loyola Lima Peru

4. EviSalud – Evidencias en Salud Lima Peru

5. Sydney School of Public Health Faculty of Medicine and Health University of Sydney Camperdown New South Wales Australia

Abstract

AbstractBackgroundEngaging diverse stakeholders in developing core outcome sets (COSs) can produce more meaningful metrics as well as research responsive to patient needs. The most common COS prioritisation method, Delphi surveys, has limitations related to selection bias and participant understanding, while qualitative methods like group discussions are less frequently used. This study aims to test a co‐creation approach to COS development for type 1 diabetes (T1DM) in Peru.MethodsUsing a co‐creation approach, we aimed to prioritise outcomes for T1DM management in Peru, incorporating perspectives from people with T1DM, caregivers, healthcare professionals, and decision‐makers. A set of outcomes were previously identified through a systematic review and qualitative evidence synthesis. Through qualitative descriptive methods, including in‐person workshops, each group of stakeholders contributed to the ranking of outcomes. Decision‐makers also discussed the feasibility of measuring these outcomes within the Peruvian healthcare system.ResultsWhile priorities varied among participant groups, all underscored the significance of monitoring healthcare system functionality over mortality. Participants recognized the interconnected nature of healthcare system performance, clinical outcomes, self‐management, and quality of life. When combining the rankings from all the groups, metrics related to economic impact on the individual and structural support, policies promoting health, and protecting those living with T1DM were deemed more important in comparison to measuring clinical outcomes.ConclusionWe present the first COS for T1DM focused on low‐and‐middle‐income countries and show aspects of care that are relevant in this setting. Diverse prioritisation among participant groups underscores the need of inclusive decision‐making processes. By incorporating varied perspectives, healthcare systems can better address patient needs and enhance overall care quality.

Funder

Leona M. and Harry B. Helmsley Charitable Trust

Publisher

Wiley

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