WhiMSICAL : A global Waldenström's Macroglobulinemia patient‐derived data registry capturing treatment and quality of life outcomes

Author:

Tohidi‐Esfahani Ibrahim12,Warden Andrew3,Malunis Elena4,DeNardis Peter L.4,Haurat Javier56,Black Marita56,Opat Stephen78,Kee Damien91011,D'Sa Shirley12,Kersten Marie José13,Spearing Ruth L.1415,Palomba Maria Lia1617,Olszewski Adam J.1819,Harrington Carl4,Scott Clare L.6920,Trotman Judith12

Affiliation:

1. Haematology Department Concord Repatriation General Hospital Sydney Australia

2. Faculty of Medicine and Health University of Sydney Sydney Australia

3. Australian Patient Support Group for WM WMozzies Sydney Australia

4. Board of Trustees International Waldenström's Macroglobulinemia Foundation Sarasota Florida

5. Administrative Team BioGrid Australia Melbourne Australia

6. Administrative Team CART‐WHEEL.org Melbourne Australia

7. School of Clinical Sciences Monash University Melbourne Australia

8. Haematology Department Monash Health Melbourne Australia

9. Cancer Research Division Walter and Eliza Hall Institute of Medical Research Melbourne Australia

10. Oncology Department Peter MacCallum Cancer Centre Melbourne Australia

11. Department of Medicine University of Melbourne Melbourne Australia

12. UCLH Centre for Waldenström's Macroglobulinemia and Related Conditions University College London Hospitals NHS Foundation Trust London UK

13. Department of Hematology Amsterdam UMC, University of Amsterdam and LYMMCARE Netherlands

14. Otago School of Medicine University of Otago New Zealand

15. Department of Haematology Christchurch Hospital New Zealand

16. Lymphoma Service, Department of Medicine Memorial Sloan Kettering Cancer Center New York New York

17. Department of Medicine Weill Cornell Medical College New York New York

18. Department of Medicine Warren Alpert Medical School, Brown University Providence Rhode Island

19. Division of Hematology‐Oncology Rhode Island Hospital Providence Rhode Island

20. Department of Medical Oncology Royal Melbourne Hospital Melbourne Australia

Publisher

Wiley

Subject

Hematology

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