Development of a consumer involvement strategy for a small university‐based musculoskeletal research centre

Author:

Nelligan Rachel K.1ORCID,Haber Travis1ORCID,Bennell Kim L.1,Hinman Rana S.1,Bidgood Neil2,Marlow Jennifer2,Lawford Belinda J.1ORCID

Affiliation:

1. Centre for Health, Exercise and Sports Medicine Department of Physiotherapy School of Health Sciences The University of Melbourne Melbourne Victoria Australia

2. Community‐based consumer representative, person with osteoarthritis Melbourne Victoria Australia

Abstract

AbstractObjectiveTo develop a Consumer Involvement Strategy which adheres to best practice recommendations and is feasible to implement in a small musculoskeletal research centre funded solely by external grants.MethodsThe Strategy development involved five collaborative and iterative stages: (1) conceptualisation and initial consultation; (2) formation of the Consumer Involvement Strategy Action Group; (3) defining the scope and developing the strategy; (4) consultation and refinement; and (5) presentation and implementation. The final three stages were overseen by a Consumer Involvement Strategy Action Group comprising two post‐doctoral research fellows, a PhD student representative, and two consumers (people with osteoarthritis), all with experience in consumer involvement activities in research.ResultsThe final strategy aligns with best practice recommendations and includes five unique levels of consumer involvement that were devised to encompass the wide variety of consumer involvement activities across the research centre. It includes a policy document with five strategic aims, each supported by an implementation plan, and includes a suite of resources for researchers and consumers to support its application.ConclusionThe Consumer Involvement Strategy and its described development may serve as a template for other research teams facing similar resource constraints, both at a national and international level.

Funder

National Health and Medical Research Council

Publisher

Wiley

Subject

Nursing (miscellaneous),Rehabilitation,Physical Therapy, Sports Therapy and Rehabilitation,Orthopedics and Sports Medicine,Chiropractics,Rheumatology

Reference21 articles.

1. ACTA Australian Clinical Trials Alliance. (2021). Consumer Involvement & Engagement Toolkit. Retrieved November 2022 fromhttps://involvementtoolkit.clinicaltrialsalliance.org.au/

2. AHRA Australian Health Research Alliance. (2021).Measuring the impact of consumer and community involvement in health research: An assessment of available tools. Retrieved November 2022 from https://ahra.org.au/wp‐content/uploads/2021/10/AHRA_CCI_Measuring_Impact_web.pdf

3. Barriers and enablers to consumer and community involvement in research and healthcare improvement: Perspectives from consumer organisations, health services and researchers in Melbourne, Australia

4. Key issues in co-creation with stakeholders when research problems are complex

5. Cancer Australia. (2011).National framework for consumer involvement in cancer control. Retrieved November 2022 fromhttps://www.canceraustralia.gov.au/sites/default/files/publications/national_consumer_framework_web_504af020f2184.pdf

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