1. Marie Curie Palliative Care Research Department, UCL Division of Psychiatry; Charles Bell House 67-73 Riding House Street London UK W1W 7EJ
2. UCL Institute of Child Health; Louis Dundas Centre for Children's Palliative Care; London UK
3. Great Ormond Street Hospital; Anaesthesia and Pain Management; Great Ormond Street London UK WC1N 3JH
4. Great Ormond Street Hospital; Louis Dundas Centre for Children's Palliative Care, Palliative Care Team; London UK
5. Evelina London Children's Hospital; Department of Paediatric Palliative Medicine; London UK
6. Rutgers University; Department of Sociology, Anthropology and Criminal Justice; Camden New Jersey USA