Respect, justice and learning are limited when patients are deidentified data subjects-Reference-Cited by-同舟云学术

Respect, justice and learning are limited when patients are deidentified data subjects

Published:2022-03-04 Issue:3 Volume:6 Page:
ISSN:2379-6146
Container-title:Learning Health Systems
language:en
Short-container-title:Learning Health Systems

Author:

Gross Marielle S.¹²^ORCID,Hood Amelia J.²^ORCID,Rubin Joshua C.³,Miller Robert C.⁴

Affiliation:

1. University of Pittsburgh Department of Obstetrics, Gynecology and Reproductive Sciences, University of Pittsburgh Center for Bioethics and Health Law Johns Hopkins Berman Institute of Bioethics Pittsburgh Pennsylvania USA

2. Johns Hopkins Berman Institute of Bioethics Baltimore Maryland USA

3. Learning Health Systems Initiative University of Michigan Medical School Ann Arbor Michigan USA

4. Flashbots New York New York USA

Publisher

Wiley

Subject

Health Information Management,Public Health, Environmental and Occupational Health,Health Informatics

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/lrh2.10303

Reference40 articles.

1. Dept of Health and Human Services.2017.Federal Policy for the Protection of Human Subjejcts. 6 CFR § 46. Accessed August 20 2021.https://www.govinfo.gov/content/pkg/FR-2017-01-19/pdf/2017-01058.pdf

2. Health Information Technology for Economic and Clinical Health (HITECH) Act Title XIII of Division A and Title IV of Division B of the American Recovery and Reinvestment Act of 2009 (ARRA). 2009. Accessed January 21 2022.https://www.hhs.gov/sites/default/files/ocr/privacy/hipaa/understanding/coveredentities/hitechact.pdf

3. 21st Century Cures Act Pub. L. No. 114‐255. 2016. Accessed January 21 2022. https://www.govinfo.gov/app/details/PLAW‐114publ255

4. The Research-Treatment Distinction: A Problematic Approach for Determining Which Activities Should Have Ethical Oversight

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