Establishing a Cystic Fibrosis Learning Network: Interventions to promote collaboration and data‐driven improvement at scale

Author:

Ong Thida1ORCID,Albon Dana2,Amin Raouf S.3,Bailey Julianna4,Bandla Srujana5,Britto Maria T.5,Flath Jonathan6,Gamel Breck7,Powers Michael8,Sabadosa Kathryn A.9,Saulitis Anna K.10,Thomas Lacrecia K.11,Thurmond Sophia3,Seid Michael3ORCID,

Affiliation:

1. Division of Pulmonary and Sleep Medicine, Department of Pediatrics University of Washington, Seattle Children's Hospital Seattle Washington USA

2. Division of Pulmonary Medicine, Department of Internal Medicine UVA Charlottesville Virginia USA

3. Division of Pulmonary and Sleep Medicine, Department of Pediatrics Cincinnati Children's Hospital Medical Center Cincinnati Ohio USA

4. Division of Pulmonary, Allergy and Critical Care Medicine University of Alabama at Birmingham Birmingham Alabama USA

5. James M. Anderson Center for Health Systems Excellence Cincinnati Children's Hospital Medical Center Cincinnati Ohio USA

6. Cystic Fibrosis Center, Division of Pulmonary, Allergy, Critical Care, and Sleep Medicine University of Minnesota Minneapolis Minnesota USA

7. Children's Health Pediatric Cystic Fibrosis Center Dallas UTSW Dallas Texas USA

8. Pediatrics Doernbecher Children's Hospital OHSU Portland Oregon USA

9. Cystic Fibrosis Foundation Bethesda Maryland USA

10. Adult and Pediatric Cystic Fibrosis Care Centers Rush University Medical Center Chicago Illinois USA

11. Cystic Fibrosis Center Children's of Alabama Children's of Alabama Birmingham Alabama USA

Funder

Agency for Healthcare Research and Quality

Cystic Fibrosis Foundation

Publisher

Wiley

Subject

Health Information Management,Public Health, Environmental and Occupational Health,Health Informatics

Reference58 articles.

1. Design and methods for understanding the state of cystic fibrosis care amid the COVID-19 pandemic

2. Foundation CF.CF Foundation estimates increase in CF population. Updated July 28 2022. Accessed 12 Aug 2022.https://www.cff.org/news/2022-07/cf-foundation-estimates-increase-cf-population

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