Stakeholder engagement infrastructure to support multicenter research networks: Advances from the clinical research networks participating in <scp>PCORnet</scp>-Reference-Cited by-同舟云学术

Stakeholder engagement infrastructure to support multicenter research networks: Advances from the clinical research networks participating in PCORnet

Published:2022-05-12 Issue:1 Volume:7 Page:
ISSN:2379-6146
Container-title:Learning Health Systems
language:en
Short-container-title:Learning Health Systems

Author:

Cope Elizabeth L.¹^ORCID,McTigue Kathleen M.²,Forrest Christopher B.³,Carton Thomas W.⁴,Fair Alecia M.⁵,Goytia Crispin⁶,Harrington Joseph M.⁷,Lowe Susan⁸,Merritt J. Greg⁹,Shenkman Elizabeth A.¹⁰,Stephens William J.¹¹,Templeton Anna¹²,Williams Neely A.¹³,Zemon Nadine¹⁴,Millender Sarah¹,Angove Rebekah S. M.¹⁵

Affiliation:

1. AcademyHealth Washington DC USA

2. Department of Medicine University of Pittsburgh Pittsburgh Pennsylvania USA

3. Applied Clinical Research Center, Children's Hospital of Philadelphia Philadelphia Pennsylvania USA

4. Louisiana Public Health Institute New Orleans Louisiana USA

5. Meharry‐Vanderbilt Alliance, Department of Medicine Vanderbilt University Medical Center Nashville Tennessee USA

6. Department of Population Health Science and Policy, Icahn School of Medicine at Mount Sinai Institute for Health Equity Research New York New York USA

7. CAPriCORN Patient Community Advisory Committee Chicago Illinois USA

8. ADVANCE Clinical Research Network, OCHIN, Inc. Portland Oregon USA

9. Patient is Partner, LLC Brighton Michigan USA

10. Department of Health Outcomes and Biomedical Informatics College of Medicine, University of Florida Gainesville Florida USA

11. Great Plains Collaborative, One Hospital Drive Columbia Missouri USA

12. OCHIN, Inc. Portland Oregon USA

13. Community Partners Network, Inc. Nashville Tennessee USA

14. OneFlorida Clinical Research Consortium, Clinical and Translational Science Institute, University of Florida Gainesville Florida USA

15. Patient Advocate Foundation Hampton Virginia USA

Funder

Patient-Centered Outcomes Research Institute

Publisher

Wiley

Subject

Health Information Management,Public Health, Environmental and Occupational Health,Health Informatics

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/lrh2.10313

Reference47 articles.

1. Patient Engagement In Research: Early Findings From The Patient-Centered Outcomes Research Institute

2. Methods guiding stakeholder engagement in planning a pragmatic study on changing stroke systems of care

3. Setting a research agenda for vascular Ehlers-Danlos syndrome using a patient and stakeholder engagement model

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