Swaying sickle cell research forward in support of patient reported outcomes
Author:
Affiliation:
1. Hematology Johns Hopkins School of Medicine Baltimore Maryland USA
2. Pediatric Hematology Children's Hospital of Philadelphia, Perelman School of Medicine at the University of Pennsylvania Philadelphia Pennsylvania USA
Publisher
Wiley
Subject
Hematology
Link
https://onlinelibrary.wiley.com/doi/pdf/10.1002/ajh.26086
Reference12 articles.
1. Mortality In Sickle Cell Disease -- Life Expectancy and Risk Factors for Early Death
2. Health related quality of life in sickle cell patients: The PiSCES project
3. Health-related quality of life in adults with sickle cell disease (SCD): A report from the comprehensive sickle cell centers clinical trial consortium
4. Health-related quality of life in children with sickle cell disease: A report from the Comprehensive Sickle Cell Centers Clinical Trial Consortium
5. Health-related Quality of Life in Children and Adolescents With Sickle Cell Disease
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1. Disease burden and quality of life in children with sickle cell disease in Italy: time to be considered a priority;Italian Journal of Pediatrics;2021-07-29
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