Storytelling to support legacy making for bereaved parents of children with cancer

Author:

Paul Trisha K.1,Daniels Sarah2ORCID,Love Amy2,Hart Katherine3,Kaye Erica C.1ORCID

Affiliation:

1. Division of Quality of Life and Palliative Care Department of Oncology St. Jude Children's Research Hospital Memphis Tennessee USA

2. Child Life and Music Therapy Program Department of Psychosocial Services St. Jude Children's Research Hospital Memphis Tennessee USA

3. Child Life and Creative Arts Therapy Program UC Davis Children's Hospital Sacramento California USA

Abstract

AbstractHonoring a child's legacy is an essential aspect of meaning‐making for bereaved parents, yet little is known about storytelling as a mechanism. Through narrative analysis of 19 bereaved parent interviews focused on legacy, we examined the role of storytelling in creating and sustaining legacy. Most participants (89%) told stories centered around the child's impact and parent's coping, including the child's character and interpersonal relationships during and after their lifetime as well as how the child's legacy influenced parents’ grief experiences. Future research is needed to explore the potential impact of storytelling initiatives to support legacy‐making for bereaved caregivers.

Funder

National Cancer Institute

American Lebanese Syrian Associated Charities

Publisher

Wiley

Reference20 articles.

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