Experience of caregiving: relatives of people experiencing a first episode of psychosis

Abstract

BackgroundThere has been relatively little research on caregivers of people experiencing their first episode of psychosis.AimsTo investigate dimensions of caregiving and morbidity in caregivers of people with first-episode psychosis.MethodCaregivers of 40 people with first-episode psychosis were interviewed at home about their experience of caregiving, coping strategies and distress.ResultsCaregivers used emotional and practical strategies to cope with participants' negative symptoms and difficult behaviours and experienced more worry about these problems. They increased supervision when the participants displayed difficult behaviours. Twelve per cent of caregivers were suffering from psychiatric morbidity as defined by the General Health Questionnaire. Those living with the participant had more frequent visits to their general practitioner.ConclusionsAt first-episode psychosis, caregivers are already having to cope with a wide range of problems and are developing coping strategies. Caregivers worried most about difficult behaviours and negative symptoms in participants.