A measure of perceived stigma in people with intellectual disability

Abstract

BackgroundThere is a lack of validated instruments measuring perceived stigma in people with intellectual disability.AimsTo develop a valid and reliable self-rated instrument to measure perceived stigma that can be completed by people with mild to moderate intellectual disability.MethodA literature search was used to generate a list of statements. Professionals, individuals with intellectual disability and carers were consulted about the suitability of statements. An instrument was developed containing statements about stigma with accompanying photographs. Test–retest reliability, internal consistency and the factor structure of the instrument were evaluated.ResultsThe instrument was completed by 109 people once and 88 people twice. Items with limited variability in responses and kappa coefficients lower than 0.4 were dropped. Exploratory factor analysis revealed two factors: ‘perceived discrimination’ (seven items) and ‘reaction to discrimination’ (four items). One item loaded onto both factors. Cronbach's alpha for the ten-item instrument was 0.84.ConclusionsThis instrument will further our understanding of the impact of stigma in people with intellectual disability in clinical and research settings.