Author:
Patterson Sue,Trite Jenny,Weaver Tim
Abstract
BackgroundOptimisation of the process and outcomes of service user involvement in research is dependent on understanding current practice, challenges and opportunities.AimsTo describe activities, roles and experiences of service users involved in mental health research.MethodNational cross-sectional online questionnaire survey, using snowball sampling. Descriptive statistics and framework analysis undertaken collaboratively with a service user reference group.ResultsThe survey revealed a previously undescribed, highly qualified service user research workforce. Positioned within and alongside mainstream research, respondents reported drawing on extensive service use, and passion for service improvement to challenge perceived clinical academic dominance of research. The support of peers was crucial to involvement, which typically enhanced mental health but for some, pervasive stigma and scrutiny undermined self-confidence and practical difficulties challenged equitable participation.ConclusionsRecognition of the service user research workforce will support the constructive amalgamation of academic and experiential expertise needed to shape and realise investment in mental health research.
Publisher
Royal College of Psychiatrists
Subject
Psychiatry and Mental health
Cited by
56 articles.
订阅此论文施引文献
订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献