Author:
Feast Alexandra,Orrell Martin,Charlesworth Georgina,Melunsky Nina,Poland Fiona,Moniz-Cook Esme
Abstract
BackgroundTailored psychosocial interventions can help families to manage
behavioural and psychological symptoms in dementia (BPSD), but carer
responses to their relative's behaviours contribute to the success of
support programmes.AimsTo understand why some family carers have difficulty in dealing with
BPSD, in order to improve the quality of personalised care that is
offered.MethodA systematic review and meta-ethnographic synthesis was conducted of
high-quality quantitative and qualitative studies between 1980 and
2012.ResultsWe identified 25 high-quality studies and two main reasons for behaviours
being reported as challenging by family carers: changes in communication
and relationships, resulting in ‘feeling bereft’; and perceptions of
transgressions against social norms associated with ‘misunderstandings
about behaviour’ in the relative with dementia. The underlying belief
that their relative had lost, or would inevitably lose, their identity to
dementia was a fundamental reason why family carers experienced behaviour
as challenging.ConclusionsFamily carers' perceptions of BPSD as challenging are associated with a
sense of a declining relationship, transgressions against social norms
and underlying beliefs that people with dementia inevitably lose their
‘personhood’. Interventions for the management of challenging behaviour
in family settings should acknowledge unmet psychological need in family
carers.
Publisher
Royal College of Psychiatrists
Subject
Psychiatry and Mental health
Cited by
169 articles.
订阅此论文施引文献
订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献