Parental Involvement in the Transition from Paediatric to Adult Care for Youth with Chronic Illness: A Scoping Review of the North American Literature

Author:

Badour Bryn12ORCID,Bull Amanda12,Gupta Abha A.345,Mirza Raza M.1267,Klinger Christopher A.1267

Affiliation:

1. Faculty of Arts and Science: Health Studies Program, University of Toronto, Toronto, Ontario, M5S 3G3, Canada

2. National Initiative for the Care of the Elderly (NICE), Toronto, Ontario, M5S 1V4, Canada

3. Temerty Faculty of Medicine: Department of Paediatrics, University of Toronto, Toronto, Ontario, M5S 1A8, Canada

4. Department of Paediatrics, The Hospital for Sick Children, Toronto, Ontario, M5G 1X8, Canada

5. Division of Medical Oncology, University Health Network: Princess Margaret Cancer Centre, Toronto, Ontario, M5G 2C1, Canada

6. Temerty Faculty of Medicine: Translational Research Program, University of Toronto, Toronto, Ontario, M5S 1A8, Canada

7. Factor-Inwentash Faculty of Social Work: Institute for Life Course and Aging, University of Toronto, Toronto, Ontario, M5S 1V4, Canada

Abstract

With medical advancements and improvements in medical technology, an increasing number of children with chronic conditions survive into adulthood. There is accordant growing interest toward supporting adolescents throughout the transition from paediatric to adult care. However, there is currently a paucity of research focusing on the role that these patients’ parents should play during and after the transition to adult care and if maintained parental involvement is beneficial during this transition within a North American context. Accordingly, this scoping review utilized Arksey and O’Malley’s five-step framework to consider parental roles during chronically ill children’s transition to adult care. APA PsycInfo, CINAHL, EMBASE, MEDLINE, ProQuest, and Scopus were searched alongside advanced Google searches. Thematic content analysis was conducted on 30 articles meeting the following inclusion criteria: (1) published in English between 2010 and 2022, (2) conducted in Canada or the United States, (3) considered adolescents with chronic conditions transitioning to adult care, (4) family being noted in the title or abstract, and (5) patient populations of study not being defined by delays in cognitive development, nor mental illness. Three themes emerged from the literature: the impacts of maintaining parental involvement during transition to adult care for patients, parents experiencing feeling loss of stability and support surrounding the transition of their child’s care, and significant nonmedical life events occurring for youths at the time of transition of care. Parents assuming supportive roles which change alongside their maturing child’s needs were reported as being beneficial to young peoples’ transition processes, while parents who hover over or micromanage their children during this time were found to hinder successful transitions. Ultimately, the majority of reviewed articles emphasized maintained parental involvement as having a net positive impact on adolescents’ transitions to adult care. As such, practice and policies should be structured to engage parents throughout the transition process to best support their chronically ill children during this time of change.

Publisher

Hindawi Limited

Subject

Pediatrics, Perinatology and Child Health

Reference67 articles.

1. Chronic disease and illness care: adding principles of family medicine to address ongoing health system redesign;C. M. Martin;Canadian Family Physician,2007

2. Use Your Words Carefully: What Is a Chronic Disease?

3. Transition from paediatric to adult care: what makes it easier for parents?

4. Children with medical complexity in Canada

Cited by 2 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献

同舟云学术

1.学者识别学者识别

2.学术分析学术分析

3.人才评估人才评估

"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370

www.globalauthorid.com

TOP

Copyright © 2019-2024 北京同舟云网络信息技术有限公司
京公网安备11010802033243号  京ICP备18003416号-3