Psychosocial Profile in Portuguese Adolescents with Chronic Disease Attending an Outpatient Department in a Hospital Setting

Author:

Santos Teresa12ORCID,Matos Margarida Gaspar de134,Marques Adilson13,Simões Celeste13,Leal Isabel2ORCID,Machado Maria do Céu5

Affiliation:

1. FMH, Faculdade de Motricidade Humana (Equipa Aventura Social)/Universidade de Lisboa, Lisboa, Portugal

2. William James Center for Research, ISPA-Instituto Universitário, Lisboa, Portugal

3. ISAMB, Instituto de Saúde Ambiental, Faculdade de Medicina, Universidade de Lisboa, Lisboa, Portugal

4. INSERM/University Paul Sabatier (Sabbatical Grant Foundation for Science and Technology (FCT-SFRH/BSAB/135160/2017)3, Toulouse, France

5. Faculdade de Medicina da Universidade de Lisboa, Departamento de Pediatria do Hospital de Santa Maria, CAML, Centro Académico de Medicina de Lisboa, Lisboa, Portugal

Abstract

Living with a chronic disease (CD) in adolescence involves new multifaceted challenges. This study aims to conduct a psychosocial characterization of a group of adolescents with chronic diseases in a hospital setting and to compare such dimensions for the total group and for different diseases. A cross-sectional study included 135 adolescents with chronic diseases (51.9% boys; 48.1% girls), having an average age of 14±1.5 years (SD=1.5) and attending a paediatric outpatient department in a hospital setting. Statistically significant differences were found among the different chronic diseases for the variables self-regulation (adolescents with diabetes had significantly higher competencies) and multiple psychosomatic symptoms (adolescents with neurologic diseases reported significantly more complaints). Boys presented both better health-related quality of life and psychosomatic health when compared to girls. No statistically significant differences were observed for health-related quality of life, psychosomatic health, resilience, and social support. These findings bring important suggestions especially while planning interventions, which must take into account the promotion of a healthy psychosocial development, through an inclusive perspective (covering different chronic diseases), that take into consideration specific and gendered approaches. Such suggestions might help healthcare professionals to better plan interventions in order to increase their effectiveness.

Funder

Fundação para a Ciência e a Tecnologia

Publisher

Hindawi Limited

Subject

Pediatrics, Perinatology, and Child Health

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