Author:
Ollanazarova Mamura Muzaffarovna
Abstract
Genetic research has experienced rapid advancements in recent years, giving rise to a host of legal challenges at the intersection of intellectual property rights, data privacy, and ethical concerns. This article aims to analyze a key legal issue related to genetic research and propose potential solutions. We conducted a literature review, comparative analysis, and policy evaluation to identify the shortcomings of existing legal frameworks and highlight best practices from different jurisdictions. Our findings indicate that current legal frameworks may not adequately address the challenges posed by genetic research. We propose potential solutions, such as developing a comprehensive legal framework for genetic research, encouraging international collaboration and harmonization of laws and regulations, and implementing strong oversight mechanisms. By addressing these legal challenges and implementing the proposed solutions, policymakers and stakeholders can create a stable and predictable environment for genetic research that maximizes its benefits while minimizing potential harms and inequities.
Reference11 articles.
1. Contreras, J. L., & Sherkow, J. S. (2017). CRISPR, surrogate licensing, and scientific discovery. Science, 355(6326), 698-700. https://doi.org/10.1126/science.aam8335
2. Cook-Deegan, R. (2017). Patents, secrecy, and DNA. Science, 355(6322), 381-383. https://doi.org/10.1126/science.aam5956
3. Knoppers, B. M. (2014). Framework for responsible sharing of genomic and health-related data. The HUGO Journal, 8(1), 1-6. https://doi.org/10.1186/s11568-014-0003-1
4. Mittelstadt, B. D., & Floridi, L. (2016). The ethics of big data: current and foreseeable issues in biomedical contexts. Science and Engineering Ethics, 22(2), 303-341. https://doi.org/10.1007/s11948-015-9652-2
5. Global Alliance for Genomics and Health. (n.d.). Framework for responsible sharing of genomic and health-related data. Retrieved from https://www.ga4gh.org/genomic-data-toolkit/regulatory-ethics-toolkit/framework/
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