Affiliation:
1. University of Bristol, BRISTOL, United Kingdom
2. University College London, London, United Kingdom
Abstract
Explaining health technology platforms to non-technical members of the public is an important part of the process of informed consent. Complex technology platforms that deal with safety-critical areas are particularly challenging, often operating within private domains (e.g. health services within the home) and used by individuals with various understandings of hardware, software, and algorithmic design. Through two studies, the first an interview and the second an observational study, we questioned how experts (e.g. those who designed, built, and installed a technology platform) supported provision of informed consent by participants. We identify a wide range of tools, techniques, and adaptations used by experts to explain the complex SPHERE sensor-based home health platform, provide implications for the design of tools to aid explanations, suggest opportunities for interactive explanations, present the range of information needed, and indicate future research possibilities in communicating technology platforms.
Funder
EPSRC - UK Engineering and Physical Sciences Research Council
Publisher
Association for Computing Machinery (ACM)
Subject
Computer Networks and Communications,Human-Computer Interaction,Social Sciences (miscellaneous)
Reference75 articles.
1. Peeking Inside the Black-Box: A Survey on Explainable Artificial Intelligence (XAI)
2. Omar Almousa , Sebastian Mödersheim and Luca Viganò . 2015 . Alice and bob: reconciling formal models and implementation. In Programming Languages with Applications to Biology and Security: Essays Dedicated to Pierpaolo Degano on the Occasion of His 65th Birthday. Chiara Bodei, Gianluigi Ferrari and Corrado Priami, editors. Springer International Publishing , Cham, 66--85. isbn: 978--3--319--25527--9. doi: 10.1007/978--3--319--25527--9_7. 10.1007/978--3--319--25527--9_7 Omar Almousa, Sebastian Mödersheim and Luca Viganò. 2015. Alice and bob: reconciling formal models and implementation. In Programming Languages with Applications to Biology and Security: Essays Dedicated to Pierpaolo Degano on the Occasion of His 65th Birthday. Chiara Bodei, Gianluigi Ferrari and Corrado Priami, editors. Springer International Publishing, Cham, 66--85. isbn: 978--3--319--25527--9. doi: 10.1007/978--3--319--25527--9_7.
3. Metaphorical Medicine: Using Metaphors To Enhance Communication with Patients Who Have Pulmonary Disease
4. Informed decision making: an annotated bibliography and systematic review.
5. Scenario types and techniques: Towards a user's guide