Data After Life: A data donor card to provoke questions concerning post-mortem data use-Reference-Cited by-同舟云学术

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Data After Life: A data donor card to provoke questions concerning post-mortem data use

Published:2024-07 Issue: Volume:62 Page:149-152
ISSN:
Container-title:Designing Interactive Systems Conference
language:
Short-container-title:

Author:

Snow Daniel¹^ORCID,Barry Marguerite¹^ORCID

Affiliation:

1. Information and Communication Studies, University College Dublin, Ireland

Funder

ADAPT SFI Research Centre at UCD

Science Foundation Ireland Centre for Research Training in Digitally-Enhanced Reality (d-real)

Publisher

ACM

Link

https://dl.acm.org/doi/pdf/10.1145/3656156.3663726

Reference30 articles.

1. Data of the Dead: A Proposal for Protecting Posthumous Data Privacy;Ashley C;Wm. & Mary L. Rev.,2020

2. Marieke AR Bak and Dick L Willems. 2022. Contextual exceptionalism after death: An information ethics approach to post-mortem privacy in health data research. Science and engineering ethics 28, 4 (2022), 32.

3. Dirk Brockmann. 2022. The Data Donation Project Launches long covid study: Corona Data Donation Project: News and Analyses. https://corona-datenspende.github.io/en/reports/longcovidlaunch/

4. FedHealth: A Federated Transfer Learning Framework for Wearable Healthcare

5. An exploration of Aotearoa New Zealanders’ attitudes and perceptions on the use of posthumous healthcare data;Cornwall Jon;The New Zealand Medical Journal (Online),2022

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