Adult Autism Research Priorities and Conceptualization in Computing Research: Invitation to Co-Lead with Autistic Adults-Reference-Cited by-同舟云学术

Adult Autism Research Priorities and Conceptualization in Computing Research: Invitation to Co-Lead with Autistic Adults

Published:2024-01-24 Issue: Volume: Page:
ISSN:1073-0516
Container-title:ACM Transactions on Computer-Human Interaction
language:en
Short-container-title:ACM Trans. Comput.-Hum. Interact.

Author:

Ramirez Dafne Zuleima Morgado¹,Barbareschi Giulia²^ORCID,Holloway Cathy³^ORCID

Affiliation:

1. The Dextrous Web Ltd, London, United Kingdom of Great Britain and Northern Ireland

2. Keio University Graduate School of Media Design; Global Disability Innovation Hub, Yokohama, Japan

3. University College London, Computer Science; Global Disability Innovation Hub, London, United Kingdom of Great Britain and Northern Ireland

Abstract

Autism research is primarily targeted toward children and at normalizing autistic traits. We conducted a literature review of computing research on adult autism, focusing on identifying research priorities set by autistic adults and their allies, determining participation levels, identifying how autism is conceptualized, and the types of technologies designed and their purposes. We found: 1) that computing research in adult autism is neither representative of older and non-binary adults nor of autistic adults living outside the USA and Europe; 2) a lack of technologies geared towards the priorities set by autistic adults and their allies, and 3) that computing research primarily views adult autism as a medical deficit and builds design solutions and technologies that follow this marginalizing narrative. We discuss the status quo and provide recommendations for computing researchers to encourage research built on user needs and respectful of autistic adults.

Publisher

Association for Computing Machinery (ACM)

Subject

Human-Computer Interaction

Link

https://dl.acm.org/doi/pdf/10.1145/3635148

Reference240 articles.

1. Bury, S.M., R. Jellett, J.R. Spoor, and D. Hedley, “It Defines Who I Am” or “It's Something I Have”: What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer? Journal of Autism and Developmental Disorders, 2020.

2. Gernsbacher, M.A., Editorial Perspective: The use of person-first language in scholarly writing may accentuate stigma. Journal of Child Psychology and Psychiatry, 2017. 58(7): p. 859-861.

3. Kenny, L., et al., Which terms should be used to describe autism? Perspectives from the UK autism community. Autism, 2016. 20(4): p. 442-462.

4. The Parliamntary Office of Science and Technology UK, Autism, in POSTNOTE, M. Laurie and P. Border, Editors. 2020, UK Parliament.

5. Durkin, M.S., et al., Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide. Autism Research, 2015. 8(5): p. 473-476.