Assistive Communication Technologies and Stigma: How Perceived Visibility of Cochlear Implants Affects Self-Stigma and Social Interaction Anxiety

Abstract

Assistive technologies promise improved functionality for people with disabilities, but their use and adoption are complicated. Previous research has identified several reasons why people with disabilities choose to abandon their assistive technologies. However, less is known about the adoption of assistive technologies that are permanent and user perceptions of these technologies. This study builds upon existing assistive technology, disability, identity, and stigma literature by examining the role of perceptions of cochlear implants, an assistive technology that permanently renders an invisible disability visible, among the single-sided deaf community. Analysis of survey data from 332 single-sided deaf individuals with cochlear implants all over the world revealed that the perceived visibility of assistive technology is positively associated with self-stigma and social interaction anxiety. Results from this study highlight the centrality of sociotechnical perceptions of assistive technologies to the experience of stigma, rather than the objective characteristics and features of technology, and problematize the existing dichotomous approach (visible v. invisible) to understanding assistive technologies. This study also illuminates the importance of studying assistive technologies on an intragroup level as well as focusing on how specific stigmatized niche communities may perceive and use their assistive technologies.