Introducing a Clinical Practice Guideline in Physiotherapy to Address Sexuality in Adults with a Neuromuscular Disorder

Author:

Fisette-Paulhus Isabelle1,Morin Mélanie12,Fortin Julie3,Gagnon Cynthia123

Affiliation:

1. From the: Faculté de médecine et des sciences de la santé, Université de Sherbrooke, Sherbrooke, Québec, Canada

2. Research centre of the Centre hospitalier universitaire de Sherbrooke, School of Rehabilitation, Faculty of Medicine, University of Sherbrooke, Sherbrooke, Québec, Canada

3. Groupe de recherche interdisciplinaire sur les maladies neuromusculaires (GRIMN), CIUSSS du Saguenay-Lac-St-Jean, Hôpital de Jonquière, Jonquière, Québec, Canada.

Abstract

Purpose: We present the development and the key elements of a clinical practice guideline (CPG) in physiotherapy aiming to address sexuality, more specifically impairments and limitations that can interfere with sexual activity in adults with a neuromuscular disorder (NMD). Method: The CPG was based on the Rare Knowledge Mining Methodological Framework (RKMMF) and included a literature review, consultation with physiotherapists, and validation by an interdisciplinary team. The EX-PLISSIT (extended, permission, limited information, specific suggestions, intensive therapy) model and the Competency Profile for physiotherapists in Canada were also used as frameworks to divide the CPG into sections. Here, we present the methodology for the CPG development and key elements related to physiotherapy assessment and treatment related to sexual activity in people with NMDs. Results: An extensive CPG was developed through a literature review, consultations, and a validation process. A total of 75 articles were included in the review. Twelve physiotherapists and four health professionals reviewed the CPG. Physiotherapists should address the following in their assessment: relationships; assistance required during sexual activity; urinary, vaginal, or anorectal symptoms; erectile dysfunction; pain; fatigue; and the impact of the NMD on sexuality. Interventions can target physical activity, positioning, muscle weakness, fatigue, decreased range of motion, erectile dysfunction, sensitivity disorders, lubrication, pain, incontinence, and cardiorespiratory implications. Conclusions: The CPG promotes the importance of addressing sexuality and proposes different interventions that physiotherapists should integrate into their practice.

Publisher

University of Toronto Press Inc. (UTPress)

Subject

Physical Therapy, Sports Therapy and Rehabilitation

Reference59 articles.

1. C-26, Code des professions (April 1, 2022) [Internet]. Légis Québec; 2022 [cited 2022 Jul 5]. Available from: http://legisquebec.gouv.qc.ca/fr/showdoc/cs/C-26.

2. Dystrophie Musculaire Canada. Qu’est-ce que la dystrophie musculaire. Available from: https://muscle.ca/fr/decouvrir-la-dystrophie-musculaire/quest-ce-que-la-dystrophie-musculaire/.

3. Consensus-based care recommendations for adults with myotonic dystrophy type 1

4. Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and pharmacological and psychosocial management

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