Difficulties Experienced by Mothers in Newly Diagnosed Type 1 Diabetes Mellitus: A Phenomenological Study

Abstract

Objective: The aim of this study was to explore the experiences of mothers of newly diagnosed Type 1 Diabetes Mellitus (T1DM) children, to identify the difficulties mothers face in diabetes care, and to identify appropriate solutions. Methods: Mothers of children aged 6-12, who have been newly diagnosed with T1DM, have been included in the workforce due to the adaptation period for school. Online interviews were conducted with the mothers using a phenomenological research design and hermeneutic phenomenological approach. Results: It was determined that the mothers had concerns about their children diagnosed with T1DM, that the children diagnosed with T1DM had concerns about their siblings, and additionally, they had psychosocial problems. The reasons for these concerns and problems are restrictions or rules, the approaches of the child's friends, and the attitudes of individuals in society. The resources that mothers receive support from in the process are family, friends, health professionals, school administration, school teachers, and a school nurse. Conclusion: As a result, it was concluded that the school management and teachers, health team, social awareness, psychosocial support groups, and technological developments are or will benefit from them, and that these resources are important in supporting mothers and children to cope with T1DM and increasing positive experiences in follow-up.