Factors affecting psychological problems in primary caregivers of People with Multiple Sclerosis: a qualitative study

Abstract

Objectives: The present research aimed to explore factors affecting psychological problems among primary caregivers of individuals with Multiple Sclerosis (PCIMS). Methods: The present qualitative research employed a content analysis approach and was conducted in Isfahan, Iran in 2018-19. The participants were selected through purposive sampling method. Semi-structured interviews were conducted to explore psychological problems involved in providing care to MS patients and the factors affecting them with 8 patients, 10 caregivers and 3 healthcare providers. Conventional content analysis was used to analyze the data. Results: The acquired data were put in 4 main categories of “isolation and loneliness”, “caregiver’s concerns”, “frustration and hopelessness” and “Disruption in the family foundation”, each with certain sub-categories. Conclusion: The present results can be helpful to manage psychological disorders and the underlying factors of PCIMS. Thus, healthcare providers and policy-makers should consider these areas and make special attempts to improve the performance and conditions of these caregivers to maximize the quality of care provided.