Effect of Hemoglobinopathies on Adolescent's Behaviour at Heredity Blood Diseases Center

Abstract

Objectives: The objectives of the present study were to determine the effect of hemoglobinopathies disease on adolescent's behavior and to find the relationship between adolescent's socio-demographic characteristics and the effect of Hemoglobinopathies on Adolescent's Behavior. Methods: Adolescents male and female with (beta thalassemia and sickle cell anemia) who were between the ages of 12 and 20 were the participants of a descriptive study. The research began on June 17, 2022, and lasted until November 15, 2022 to determine the effect of hemoglobinopathies disease on adolescent's behavior. A non-probability purposive sample of (105) adolescents was chosen at the Heredity Blood Diseases Center in Ibn Al Balady for children. and maternity. The information gathered between the 15th of July and the 15th of August 2022 using a built-in questionnaire and a direct interview method. Results: The findings of this study show that hemoglobinopathies disease have a moderate to low effect on adolescents' behavior, with 53.3% of them are showing moderate and 41.9% are showing low.  Conclusions: The study conclusion that the behaviour was affected at moderate level. The results recommend offering adolescents with hemoglobinopathies an education program to enable self-management and provide them enough knowledge of the disease to avoid complications and make life plans.