Models of care and the advanced practice nurse role in caring for children and adolescents with a cancer predisposition syndrome: a scoping review protocol-Reference-Cited by-同舟云学术

Models of care and the advanced practice nurse role in caring for children and adolescents with a cancer predisposition syndrome: a scoping review protocol

Published:2023-11-06 Issue: Volume: Page:
ISSN:2689-8381
Container-title:JBI Evidence Synthesis
language:en
Short-container-title:

Author:

Grant Andrew M.¹²³,Signorelli Christina¹⁴,Taylor Natalie⁴⁵,de Graves Sharon⁶⁷,Tucker Kathrine M.¹⁴⁵⁸,Cruickshank Marilyn¹²⁵⁹

Affiliation:

1. Sydney Children’s Hospitals Network, Sydney Children’s Hospital, Sydney, NSW, Australia

2. University of Technology Sydney, Sydney, NSW, Australia

3. The New South Wales Centre for Evidence Based Health Care: A JBI Affiliated Group, Western Sydney University, Sydney, NSW, Australia

4. University of New South Wales, Sydney, NSW, Australia

5. Maridulu Budyari Gumal (SPHERE), Sydney, NSW, Australia

6. VCCC (Victorian Comprehensive Cancer Centre) Alliance, Melbourne, Victoria, Australia

7. University of Melbourne, Melbourne, Victoria, Australia

8. Prince of Wales Hospital, Sydney, NSW, Australia

9. Griffith University, Griffith, QLD, Australia

Abstract

Objective: This scoping review will examine the literature describing models of care, barriers and facilitators of care, and gaps in care delivery for children and adolescents with a cancer predisposition syndrome (CPS). It will also explore how advanced practice nurses contribute to the delivery of care for children and adolescents with a CPS. Introduction: Cancer remains a leading cause of death in children and adolescents. Pediatric CPS clinics proactively aim for early diagnosis or prevention of cancer in children and adolescents with a CPS. Additionally, the holistic well-being of individuals requires a multidisciplinary team, including advanced practice nurses, to manage their complex health care needs. Inclusion criteria: This review will consider both published and unpublished literature exploring aspects of models of care and the role of the nurse in pediatric CPS clinics. Literature published in English from 1991 will be considered. Methods: This scoping review will follow the JBI methodology for scoping reviews. The review will include searches in MEDLINE, Embase, and CINAHL Complete. Gray literature searches will be conducted in OAIster and Social Science Research Network (SSRN), as well as websites of hospitals in the USA and the UK with large pediatric cancer centers. Two reviewers will screen titles, abstracts, and full-text articles. An extraction table will be used to extract relevant data from all included articles and facilitate data analysis. Results will be presented in narrative and tabular format. Review registration: Open Science Framework osf.io/axkp7/

Publisher

Ovid Technologies (Wolters Kluwer Health)

Subject

General Nursing

Reference24 articles.

1. The need for tumor surveillance of children and adolescents with cancer predisposition syndromes: a retrospective cohort study in a tertiary-care children’s hospital;Huber;Eur J Pediatr,2022

2. Childhood cancer predisposition syndromes-a concise review and recommendations by the Cancer Predisposition Working Group of the Society for Pediatric Oncology and Hematology;Ripperger;Am J Med Genet A,2017

3. Comparing models of delivery for cancer genetics services among patients receiving primary care who meet criteria for genetic evaluation in two healthcare systems: BRIDGE randomized controlled trial;Kaphingst;BMC Health Serv Res,2021

4. Beyond the rhetoric: what do we mean by a ‘model of care’?;Davidson;Aus J Adv Nurs,2006

5. Predisposition to cancer in children and adolescents;Kratz;Lancet Child Adolesc Health,2021